Update from Loretta

imageI’m doing well I keep saying I owe you an update but time flies by! I was at my therapist yesterday and she measured me and I am smaller than the last which was in September. Overall much smaller than before the surgery.😊My thigh is “normal ” but where he implanted the nodes in my calf is a little bigger. You would have to look hard at my leg to see the difference.
I stopped wearing a tribute at night and decreased my stocking compression to a class 1 from a 3, BUT I still wear my ready wrap on top of the stocking.
The end of January I am scheduled for my one year MRA and beginning of February a Lymphocintigraphy, excited to see how my babies are performing!! I see my surgeon after the testing.
Hopefully he will tell me to get rid of the wrap and start with a higher compression stocking to make up for the loss of the wrap.
All in all the surgery seems to be working for me and hopefully I continue to see results.
You can share this on your site and if anyone would like to contact me I would be happy to speak to them.

This is a link to her previous post at time of surgery


Even though there are not many new posts this blog is always being monitored and someone can answer questions …love to hear your stories always ..plus I reblog any interesting posts from others on lymphedema…

Copyright © 2013-2016by Helensamia. All rights Reserved.

Feel free to share with others. It can be distributed via social media, reblogged or added to websites. Please do not change the original content and provide appropriate credit by including the author’s name and a link to this blog.
https://lymphnodetransplant.wordpress.com/ Thanks


Exercise to help your lymphatics..

From time to time I am asked by people if they can write an article for this blog, some I refuse and others I accept. This is an article about Rebounding as a way to help the lymphatics. I was once told that 15 minutes a day jumping on a mini trampoline would be great for my lymphedema. I gave it a go and was amazed that it was hard work!!  But it felt good … I am aware that some of you would not be able to do this exercise but for others it is something different to do at home. I think you can also get mini trampolines with a handle for support.



Rebounding & your Lymph System … Health Benefits Galore!

As you may know, your lymph system plays a vital role in your body’s ability to fight disease and self-maintenance. But, unlike your circulatory system, there is no “motor” to get your lymph system revved up and your lymph moving. There are various self-care methods you can use to stimulate your lymph, including manual lymph drainage, skincare, and exercise. Exercise is extremely important, as not only does it benefit your overall health, but can help relieve some of they symptoms of lymphedema and other lymphatic disorders. If you are living with lymphedema, make your exercise time count with efficient exercises that impact your lymph system. Lymph in your body flows vertically, meaning traditional exercises such as running won’t be as effective as you would like with getting your lymph moving. Focus on vertically oriented activities that use the force of gravity, such as jumping jacks and rebounding. Rebounding is just a fancy term for bouncing on a trampoline, and it can have tremendous benefits including increasing your lymph flow and improving your overall health. In this infographic from Rebounder Zone, you can see the wide-ranging positive impact rebounding can create for your body. Don’t let a sluggish lymph system prevent you from living the active life you want and enjoying the health you deserve!
Leonard J. Parker III
Business Development Manager
Rebounder Zone

Deep Lymphatic Drainage …. Update

imageI originally wrote about going for a session of Deep Lymphatic Drainage a couple of weeks ago. Yesterday I went for my third session and as promised I am now following up, as the therapy is a little different to usual MLD!!

Prior to seeing Shan at Shan Therapy I had been attending Macquarie Uni Hospital physiotherapy department for MLD and follow up post surgery care. The problem was there did not seem to be a protocol for this, as some doctors have overseas. Dr Massey likes all her patients to bandage and do MLD for three months after surgery… 24/7…. I found myself trying  this and trying that and I found that when I asked question I was given the “I don’t know” answer and the problems I was having with my knee after the surgery were also not being addressed. However my leg did reduce from the post surgical swelling using Ready Wraps and compression stockings and weekly MLD,  but then it just got to a plateau and my knee was worse than pre surgery, which was very scary.  It is not always good to be the first and to “blaze the trail”. I decided that I needed to find some help for myself. My body was feeling congested, I was struggling emotionally. I started to question why I would have had this surgery, being the first in Australia I had no one to relate to and felt quite alone. Thank goodness for the Internet and this blog which has allowed me to contact fellow patients overseas which has really helped. We call ourselves “the leg ladies.”


Visiting Shan for the third time I felt like I was returning to a safe haven, where someone would listen to me and help. At the start of each session we talk about what has happened as a result of the previous session, how is the leg,  how does the treatment need to be adjusted to make the most impact. I think that this is the difference in conventional MLD, as the therapy is always the same, at the hospital the work was all about the leg and not my whole body and we reached a stage where no more could be done. The lymphatics are all one network, each area affecting another, if they are not in balance you have no hope of helping the problem limb. Deep Lymphatic Therapy is MLD with extras!!!!

Once again I was laying on a bed of magnetised water and also around my head, Crystal Quartz were taped to all the main areas of lymph nodes. Shan said she would take a picture of me but not sure I am ready to share that picture on my blog!! Again Shan starts to work on the nodes and pathways using a Crystal Quartz wand, this feels warm, first the left arm is cleared then left leg, right leg and finally right arm. Each area is checked to see if it feels lighter when lifted and only then does Shan move on to the next limb. I am also given essential oils to inhale, these vary but we have used, Wild Lavender, Peppermint, Fennel, Fragonia and Ylang Ylang, dependent on what Shan feels is needed. The session lasts two hours and during it I have water to drink and before a detox tea of lemon, ginger, dandelion and honey. By the end I am ready to go to the loo!!!! I know some of you are reading this and going, “What is she doing, has she gone quite mad!” There are times that we don’t always understand why things work, but just have to except that it does and also that there are people who have the ability to heal. Some MLD therapist have been in touch with me and find it very difficult to acknowledge this therapy, but I say I have the results!! I now have two ankles the same size, the knee and thigh are reducing and look much better, my tummy and groin area have reduced, I notice this especially in the morning, I don’t feel congested anymore, I feel better mentally, I feel supported and best of all Shan has an answer for my knee!!! When you have surgery there is scar tissue, the muscle sheath or fascia can get puckered or gathered and this leads to the kneecap not tracking properly when you move it. Makes perfect sense as below my knee cap you can see a tight line, Shan is now working to release this and in time my knee should return to normal. All I can say is why could neither a doctor or physiotherapist recognise this or listen to my repeated, “There is something wrong with my knee when I walk!”  I also have exercises to improve the numbness in my lower leg and foot.

I  think that what is working is the holistic approach to my Lymphoedema in conjunction with the transplanted nodes, which are supported while they grow.  The use of different modalities including medical and alternative are all helping. I don’t believe that my Lymphoedema will ever be “cured” but I do believe it will be greatly improved and easier to manage…. A cure would be a wonderful bonus!! Thank you Shan for your help and if Rosemary were  alive I am sure she would be interested to see the progress.


Dr Corrine Becker talks about Lymph Node Transplants

In this video Dr Corrine Becker talks about Lymph Node Transplants. This is one in a series that she made for Talk About Health, an interactive site, where you can find out about the latest treatments for various health issues. Thanks to Talk About Health for creating these videos to increase our knowledge of Dr Becker’s work..


This is a link to connect and view the rest of the videos of Dr Corrine Becker created by Talk About Health.. In them she answers many of the questions that people have regarding this innovative surgery.. Please click on the link below.


In retrospect…. Living with Primary Lymphoedema… Reblog

I found this blog today , or should I say this lady found me, her blog is about her life living with Primary lymphoedema. Please give her your support as she had stopped writing for a while as she felt there was a lack of interest. Her account is open and honest and gives a true picture of the difficulties she encounters every day. Primary Lymphoedema is different to secondary as there is a weakness in the entire lymphatic system which causes a whole set of different
problems… Please follow and share to build awareness.. Thanks


In June of 2001, I met my best friend. She was small, practically pocket-sized, and kinda wrinkly. The first time I looked at her I was in love. She was already pretty spoiled when I met her; she’d had her own built-in swimming pool for months, music piped in daily with her very own soloist to accompany, and more sushi than she could eat.

At 8 months, something went wrong with her swimming area. The pool flooded so, with a little help, she was brought into the world one month early. Bright and beautiful. What we didn’t know then was that my lymphatic system had shut down.

In 2006, five years after my daughter was born, I found myself sitting in a salon in a barber’s chair talking to one of my then-clients, Brian Kuhn at Evolutions. I think hairdressers and bartenders must be kindred, it always seems so…

View original post 824 more words

Exercises to stimulate the Lymphatics .. Video

This is a set of exercises for the upper and lower body that can be done at home. The videos are put together by Heidi Roe for the Michigan State University rehabilitation unit. In the videos Heidi refers to a sheet of exercises with the repetitions which we do not have, but I would say five of each would be a good number. Just remember do not over do the exercises and keep the body cool as over heating creates more lymph, which in turn needs to be expelled. These exercises create an effect on the lymphatics by the movement of the muscles that squeeze the lymph vessels, this then pushes the lymph away from the extremities to the neck and abdomen, to then be released from the body. It is best to do the exercises wearing your compression garments as this helps to also move the lymph along the lymphatic vessels. Drink plenty of water to help expel toxins. Remember that the lymphatics do not have a heart to pump as the veins do and are reliant on movement to work.
Swimming, water aerobics and walking in a pool are also great exercises for Lymphoedema as the water acts as a natural compression, it is very liberating to get out of the compression garments for a while especially in hot weather. Going out for a good walk at anytime also gets the lymphatics pumping, just a short walk can make a difference. Make some form of exercise part of each day no matter how little or how much it will help. My favourite is to go for walks and in the summer to find a pool!!

A Simple exercise to aid the Lymphatics… Video

Simple exercise to stimulate the Lymphatic system  Click on this link to view.

Shan, at Shan therapy created this video to demonstrate a simple exercise to stimulate the Lymphatics. This can be done very easily on waking, before bed and at other times to get the system moving. This can add a bit of variety to the daily routine!! Please click on the link to view. Thanks Shan for this.


Deep Lymphatic Drainage


Crystal Quartz.. Google images

“Clear Quartz is known as the “master healer” and will amplify energy and thought, as well as the effect of other crystals. It absorbs, stores, releases and regulates energy. Clear Quartz draws off negative energy of all kinds, neutralising background radiation, including electromagnetic smog or petrochemical emanations. It balances and revitalises the physical, mental, emotional and spiritual planes. Cleanses and enhances the organs and subtle bodies and acts as a deep soul cleanser, connecting the physical dimension with the mind. Clear Quartz enhances psychic abilities. It aids concentration and unlocks memory. Stimulates the immune system and brings the body into balance. Clear Quartz (Crystal Quartz, Rock Crystal) harmonises all the chakras and aligns the subtle bodies.” Ref. Caryl Haxworth Charms of Light

Rosemary D. White spent many years working at Mt Wilga hospital that has a specialist Lymphoedema clinic. It is here that I had five weeks of treatment when I was first diagnosed and again in 2009 after an infection. Mt Wilga, under the care of Dr Helen Mackie, has always been at the forefront of treatment even when no one else was helping. However Rosemary found that there were cases that did not respond to MLD, or if they did it did not last for long, she made it her life’s work to find better ways of treating Lymphoedema. Rosemary wanted to stimulate the deeper Lymphatics that remained untouched by MLD which would enhance the benefits of treatment. Rosemary looked at all types of alternative therapies to find an answer and found that the use of Crystal Quartz could help with decongesting the Lymphatics in conjunction with  magnetised water. Rosemary went on later to teach at Nature care and was Education Officer for the Australian Deep Lymphatic Therapists Association. When Rosemary died,  in her 70’s, she had taught her treatment to a handful of therapists who continued her work. She did not live long enough to see it tested scientifically but there have certainly been some beneficial results.  Yesterday I went to see Shan, at Shan Therapy, a pupil who has continued Rosemary’s work. This is the story of my treatment which was very unusual but totally amazing. I have no idea how or why it works so I will just describe my experience.


Clear Crystal Quartz enhances healing.. Google images

Shan told me that about half an hour before my appointment I should eat some protein, on arrival I was given a herbal tea made of lemon, ginger and dandelion, which is good for the lymphatics.  The massage table had a layer of bags filled with water that had  been magnetically charged. I also had bags of magnetised water placed under my neck and around my head!! I think I was glad no one was there to take a photo as I think I looked like a large baby all wrapped up with a bonnet on!! Next Crystal quartz pieces were taped to all the main Lymph node areas from head to toe. Shan then used a piece of quartz instead of using her hands to work on the various areas of the body, clearing one section at a time. Stimulating the nodes via the crystal which sends  a piezoelectric effect to stimulate the deeper nodes. The first area cleared was the left quadrant, asked to lift my arm it felt lighter than my right arm, then left leg and then right and finally the right arm… Each time testing how the limb felt against the untreated one. At times Shan said my face lost all its colour so in between I was given drinks of water, aromatherapy to inhale and breathing exercises. This whole cycle of treatment continued until all limbs felt light, I was there for two hours in total.


Diagram showing deeper Lymphatics that are stimulated by this treatment.. Note the right hand quadrant only drains from the waist up. the rest of the body drains into the left quadrant.. Diagram from Shan Therapy

I told you it was different and I cannot really describe it properly. I did get the typical detox headache after and went to the loo quite a lot, as fluid left the body. However today I feel good, my body feels less congested and lighter. Three treatments are suggested so I will see what the final outcome will be. It certainly did me no harm and Rosmary spent years working on this, creating a treatment that she felt stimulated the Deep Lymphatics rather than just the surface ones that Manual Lymph Drainage works on.

These are two articles written by Rosmary that explain the treatment in a more scientific way. Those of you who are therapist may have used this method or heard of it. I would love to hear your experiences.

Anatomy Of The Deep Lymphatic System – Key To Lymphatic Drainage

Rosemary D. White Journal of the Australian Traditional-Medicine Society March 2007 Volume 13 Issue 1
This article describes the anatomy of the deep lymphatic system. Clinical experience indicates that the piezoelectric effect, generated by suitably sized quartz crystal tools when applied by hand over deep lymphatic trunks and nodal complexes, effectively stimulates them, significantly improving lymphatic function. Particular areas of congestion can be specifically targeted resulting in major benefits for clients. Ref. R.D. White

Nodal Massage Using Deep Lymphatic Therapy And Holistic Care

Rosemary D. White Journal of the Australian Traditional-Medicine Society June 2010 Volume 16 Issue 2


Clear Quartz Crystals.. Google images

On being a Carer… My wife has Mesothelioma

I have been asked by Cameron to share an article with you about his role as a carer to his wife who has Mesothelioma. Often the partners and carers of those of us who have cancer are neglected and the wonderful role that they take on. We do not hear them complain but at times it must be very difficult. His blog and other articles are also insightful, bringing awareness to  his role and his wife’s surgery.  In sharing he hopes to build understanding of Mesothelioma  and how it feels to be a Carer .

English: Mesothelioma of the left lower lung.

English: Mesothelioma of the left lower lung. (Photo credit: Wikipedia)

This a link to Cameron’s Blog … Please take some time to read it…

What Cancer Taught Me and My Family

“My wife has said on many occasions that she doesn’t know what I went through when she was diagnosed with mesothelioma. It was three months after the birth of our daughter, Lily. We were so overjoyed and happy with our daughter, full of excitement at the prospect of what the future might hold for our new little family. We had no idea that all that would change when her doctor looked at her and told her she had cancer. I watched as Heather cried at the news, and I wondered how in the world we were supposed to get through something this awful. I was on the verge of a breakdown when the doctor’s comments about medical decisions forced me to focus on our terrible reality.

More than anything, I was so angry. I was angry that my wife had cancer, and I spent a great deal of time and energy on angry outbursts of profanity. It took me a little while to realize how selfish I was being, and I realized that the last thing my wife needed was to see how scared I was. I knew I had to get my emotions under control. It wasn’t easy, but eventually I was able to get to together, and from that point on I did my very best to be nothing but a source of hope and optimism for my family.

I had such a long to-do list that included everything from my job, to making travel arrangements for doctors appointments, to taking care of my family, our pets, etc, that I almost couldn’t handle it. I was overwhelmed. I had to learn to prioritize and create a plan. I also learned to accept all of the generous offers of help that came from our loving community. I realize how blessed my family is to have such amazing loved ones in our lives.

In February 2006, Heather and I traveled to Boston for her extrapleural pneumonectomy surgery. While we were in Boston, Heather’s parents were caring for Lily at their home in South Dakota. We had a decision to make. I had to work, and I couldn’t give Heather and Lily the constant care that they needed while working full-time, so after the operation Heather went to South Dakota to stay with her parents while she recovered and prepared for the next phase of her treatment. They were gone for two months. It was so hard being away from them, but it was necessary.

I saw my family one time in two months. I drove through a snowstorm on a Friday night after work and had to do it again on Sunday so I could be at work Monday morning. The drive is 11 hours one way. It was hard, but it was so good to see my family. I don’t regret making any of the difficult decisions we made, because they were decisions we were lucky to be able to make. This is something I learned throughout Heather’s diagnosis – never regret the tough decisions that cancer forces you to make. Instead, take comfort in the fact that you retain the ability to make decisions at all. I also learned that you just have to accept the help that is offered to you if you ever plan on making it through these difficult days. I am forever grateful to those who helped us overcome this time in our lives.

Heather has now been healthy for more than six years, and it is such a blessing. I hope that this story, and my experience can help someone else who is suffering from cancer to get through this very difficult time”…. By Cameron

I would like to take this time to thank everyone who has ever taken the role of Carer… You make it possible for us to focus on getting well.. Thank you

This is a link to a story from Susan who’s husband died of Mesothelioma … I have been asked to share this in his memory and to help others… Thank you Susan