Believe in yourself….

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This blog has the stories of mine and others journey with Lymphoedema, how, why and where! We are each different in how we came to have Lymphoedema, but what we have in common is stepping out into the darkness in search of surgery that may help or heal the Lymphoedema…. What we would love is to throw away the compression garments and say that’s it… No more!!!! However the journey is slow, filled with ups and downs, as the research and knowledge grows more progress is made but the waiting to see if nodes have grown, lymph vessels established takes time. My thoughts are that for legs more than one transfer is needed as it is a larger area than the arms, but only time will tell! For some it is a combination of LNT and liposuction or just the liposuction. Now we have a new area to monitor with the use of Stem Cells being added to the mix.. We await the progress of Val who is having Liposuction and stem cell therapy. I must add though at this stage there is no proof that the stem cell therapy works and it is very much experimental… Follow up needs to be done over a number of years with all these surgeries. Specialist Lymphoedema Liposuction (not cosmetic liposuction) reduces swelling but a compression garment needs to be worn 24/7 after surgery to stop the limb re swelling..

If you are new to this blog there is a great deal of information re surgery and self-care. If you would like to find a particular topic use the search button found by scrolling down the posts to the bottom.

Nothing in this blog replaces medical advice and I make no opinion on which surgery or procedure is better or worse!! I just wanted to bring together people’s experience from a personal, patient centred view-point. I hope to be able to follow those who have given their stories for a number of years to get a true picture of their progress. I would also love to share more posts about people’s personal experiences of either living with Lymphoedema or the surgeries that people have had.. My email is helenbrd@bigpond.net.au

If people wish to remain private I will not use real names, but the more we share the more we learn… Thanks for all the support, wonderful comments and just being there for me, the Internet is an amazing tool when stepping out alone.. I feel it is so important that we “Believe in Ourselves”… To those having surgery I wish you good luck … You know who you are…Be strong and heal well .. Helen

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The search for the Holy Grail- a cure for Lymphodema? (Pre-operative thoughts)

Thanks Val for allowing us to share your journey via this blog… I will be following with interest the progress and results … Good luck on your surgery day…

I must note that this treatment is experimental and there have been no clinical trials nor results from  previous patients other than they are still wearing compression… at the moment the results are the same as for liposuction.. Caution should be used with stem cells at this time as they are being offered with out the backing of results to show safety and results … The info in this booklet is very helpful in making decisions re stem cells and gives a better understanding of where this research is at…   https://lymphnodetransplant.wordpress.com/2013/12/08/features-of-unproven-stem-cell-treatment/

lymphodemalifeinkorea

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November 2013.

My name is Valerie, I’m 52. I currently live in South Korea, with my wonderful husband and our two Cairn Terriers.

This blog aims to reflect my thoughts and opinions on receiving a different new treatment for a couple of medical conditions that are making my daily living much tougher. I hope this journey and collection of facts and thoughts will be helpful to other sufferers about this new treatment, but I am not a medical person, so they may be simplistic rather than medically correct or complete.

I am just an average human being, looking for a cure. If you are too, then – Welcome! I would be happy to share the journey of this experience with you, please feel free to ask if there’s anything you want to know about what happens over the new few months.

I hope you find at least some of it useful as we all hope we…

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