Stronger Together – An open letter to the lymphedema community

Life With Lymphedema

One of the major reasons that we wanted to start this blog was to bring together primary and secondary lymphedema in the same place. We understand that there are some differences in our challenges, but we will never lose sight of the emotional side that connects us. Encouragement towards one another makes us stronger as people and friends. We grow from our struggles and thrive with the success of managing our lymphedema together.

It is discouraging to hear people complain that cancer-related lymphedema gets too much attention in the media. We understand that it is frustrating for people with primary lymphedema to feel ignored. The reality is that primary lymphedema is much harder to diagnose. It is less likely to have an obvious cause and it can show up a different times in a person’s life. However, we believe that the major point is often missed: LYMPHEDEMA IS BEING TALKED…

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Lymphedema Awareness Day

Joining together to build awareness of Lymphoedema. Thanks for this post that brings together those giving Lymphoedema a voice.

The Lymphie Life

Happy Lymphedema Awareness Day!

Today is a day for us to join together and use our voices not only to spread awareness about lymphedema, but to celebrate our amazing community. I am constantly in awe of the lymphie spirit, which is so persistent and positive in the face of something that can, at times, feel so hopeless. It’s true that there is no cure for lymphedema, but there is hope through spreading awareness—and that’s what today is all about!

Established by the National Lymphedema Network in 1994, Lymphedema Awareness Day is specially designated to honor lymphedema patients and our health care providers. It’s also a day for us to raise our voices and let the world know that we’re here and that we deserve treatment, insurance coverage, and support for this condition.

Lymphedema affects millions of people worldwide and can be caused by injury, trauma, or congenital defects in the…

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