August 2009…… I was only 17, when it all started.

Reblogging this post from a new Blog called Lymph Me… Remembering being disgnosed and not knowing what Lymphedema was… We have all been there so please support and share.. Thanks

LymphMe

I can still remember the day as though it was yesterday,when I was diagnosed

It was in the year 2009 when I was involved in a school production. The theme was Moulin Rouge and my friend and I Meggan Shiels and a few other girls were a part of the dancing crew.

I got home from school,after the production, on one of the compulsory weekend outs that the school encouraged for scholars who were in boarding school.Production excitement was still buzzing and just wanted to share the buzz with my mom.

Next day, while doing house chores, I noticed that the painless swelling has begun again. And so I did what every teenage girl would do (well some girls), I told my mom about it. She took one look at feet and said ,” Nana, you’ll be fine. You must have hurt yourself during the production and didn’t notice.”

I…

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The leg is getting smaller!!

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On Friday I went for my 18 month post Lymph Node Transfer surgery check up. I am part of a research program here in Sydney. I will have follow-up for at least two years so that the doctors here can make decisions on future LNT surgery. There is a definite opinion that LNT surgery does not work if there is fibrous tissue present, as the new nodes cannot break this down, but can clear fluid and protect against infections. Therefore it is very important for the doctors to decided who is suited for LNT and who is best suited for Lymphatic Liposuction surgery. From this view point, at this time, at Macquarie Uni Hospital they are performing more Lymphatic Liposuction than LNT surgery. There is talk of maybe doing a LNT on these liposuction patients in the future, but so far this has not happened. The hope would be that the LNT would help post Liposuction and stop the limb swelling again. At this time after Lymphatic liposuction compression garments need to be worn 24/7 otherwise the arm or leg will swell. Lymphatic Liposuction is different to the liposuction for weight loss as care is taken to preserve  the existing lymphatics. http://www.ilfconference.org/fibro-lipo-lympho-aspiration-flla-a-lymph-vessel-sparing-procedure-lvsp-for-advanced-stages-of-lymphedema/

So back to my appointment and measurements which have reduced since my visit in March 2014. One of the measurements that is used is the L-Dex reading. http://international.l-dex.com/what-is-l-dex/ This compares the good and bad leg and shows how much fluid is present in the LE leg in comparison to the good leg. In March my reading was 7.1 then June 5.1 and now it is down to 4.5 which is within normal range. This is very exciting as there seems to be a gradual improvement each visit. The doctor also felt the area at the back of my lower thigh had softened a lot, with the help of three weeks compression bandaging, MLD and Compression Garments. I have also had no infections since the surgery 18 months ago so that is a huge plus for me. I am back in a pool without fear if infection which I am very happy about. If this surgery keeps my leg in the best state possible then that is a big improvement, as my fear was always that it could get worse and worse.

I have not been writing so many updates on my own progress as there has been little to say!!! It is a slow and steady reduction which takes lots of patience!!  Will I ever not wear compression?? Only time will tell… Next appointment will be March 2015, my two-year anniversary. I will be having an MRI and Ultrasound done then but I declined another Lymphasyntagraph!! No more injections between toes needed!!

If anyone else has an update to share then send this news via email to helenbrd@bigpond.net.au and I will create a post… As always sharing helps everyone… Helen

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Daring to Bare

Thanks to The Lymphie Life for reminding us that Lymphedema should not define us or stop us from doing anything we want to do.. . Reblogging this as a reminder to all.. Thanks

The Lymphie Life

Yesterday, I posted a photo to the Lymphie Life Facebook page of my bare ankles—a very big deal, as fellow lymphies can attest to—and the supportive feedback I received was overwhelming. You all are awesome, and because of all the comments, I wanted to address a couple things:

For those who are struggling to bare their lymphie limbs: It takes time! And lots of positive self-talk to gear yourself up. Something that helps me is to start small: I begin by wearing shorts around the house, then graduate to running errands with them, and then—finally—going to an event or social gathering. Exposing our swollen limbs and compression garments feels like a big deal, but it doesn’t have to be. It just takes a little time and practice to get comfortable doing it. Most people don’t even notice, and even if they do—so what?! Our health and happiness is more important than a stranger’s thoughts or comments. There’s no…

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Dry skin brushing can strengthen immunity, spark detoxification and reverse the hands of time – NaturalNews.com

Always ensure if you have Lymphoedema that you have no broken skin before doing this but is a great way to stimulate the lymphatics

Breast Cancer Authority

Dry skin brushing can strengthen immunity, spark detoxification and reverse the hands of time - NaturalNews.com Dry skin brushing can strengthen immunity, spark detoxification and reverse the hands of time via NaturalNews.com.

via NaturalNews.com.

Long used in Ayurveda, dry skin brushing is a powerful — yet exceptionally economical — healing therapy. Upon first glance, the practice may not seem like much. We may question how a quick session of brushing the skin can provide such impressive results as heightened immunity, reduction of cellulite and overall detoxification. As unlikely as it may seen, dry skin brushing delivers all of the above and more.

With this straightforward technique, you are on your way to glowing health, smooth skin and a happy lymphatic system — this last perk is especially important to keep immunity buzzing and your constitution robust. But how does it work?

When we brush the skin in an upward motion, not only are we removing surface toxins and dead skin…

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