An update from Jeanie.. LNT with Dr Chang

imageThis is a link to Jeanie’s post on her surgery with Dr Chang which was in May this year.
https://lymphnodetransplant.wordpress.com/2014/05/22/a-personal-account-of-surgery-with-dr-chang/

Via a comment on this blog Jeanie has written about her latest news, but I thought I would create a post out of it so you could all read it. Love to hear of people’s progress post surgery as this helps others. It is also a way of finding out about various doctors for surgery or therapy.

“Hi Helen! It has been 4 1/2 months since my surgery. I am feeling great and have started exercising and building my strength and stamina back. My initial impressions are favorable about having this surgery – for any people considering whether it is worth it or not. I recently met with Dr. Hutchinson, a lymphedema specialist in Minneapolis. I had never heard of her, and here she was, geographically close to me, considering I have travelled to San Francisco, Chicago, and Santa Monica, to find the most Informed researchers in lymphedema! She is helping me with the next step of physical therapy and will be my ‘go-to’ person for all further decisions related to additional surgeries, etc. (she has been – and maybe still is – on the Board for the national lymphedema network.) Her personal opinion is that Dr. Granzow, in Santa Monica has a more preferred approach to the surgeries involved with reducing and managing lymphedema. I was a little disappointed to hear that as I had obviously chosen to go with the LNT and bypass approach first, …vs the lymphatic liposuction direction first, followed by the LNT. But, as she said, no harm done, and we will now continue to manage the outcome of the surgery to help get the best results. The best news is that my leg is not getting worse! I can see small improvements in my lower leg, and with exercise and a healthy diet, I do see more positive results in my entire leg. Ironically, if I have too any extra sugar or salt, my leg seems to instantly retain fluids …. 8] ….seriously! it feels instantaneous. S, again the good news, is that my keg is not getting worse. There are small improvements…and I remain hopeful for better results in the future! So excited to see the news on lymfactin….I would so love to be a part of that study! Thank you again for all you do to keep the information flowing to all of us out here who are pioneers in the world of lymphedema surgeries! Many hugs!”

Thanks Jeanie for this latest update and glad you are going well. This is a slow process and we do need lots of patience to see real results. It really helps to have the support of others who are going through the same process as it is sometimes difficult to find the information that you need. If anyone would like to share their  experience of living with Lymphedema please leave a comment and I will get in touch with you… By sharing we help each other.. Helen

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