Always look at the funny side of life!!

Today on Facebook I saw a post of these cartoons  about Lymphedema… Each one made me chuckle so I had to share them.. They are available to buy as posters and here is the link.

http://jovipak.com/products/miscellaneous/posters

I think it is so important to keep a sense of humour when you are dealing with Lymphedema, yes there are days that we hate it and the care we have to give 24/7, but somewhere along the way we have all been in these situations…

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I hope these gave you a bit of a laugh too!!! Have a good day

Soon: 1st Center of Excellence for Lipedema Care and Treatment in NYC

This is very exciting news for anyone who has Lipedema or a combination of Lipedema and Lymphedema.. Dr Dayan is already well-respected for his Lymph node transfer surgery and the addition of treatment for Lipedema can only be of benefit … I am reblogging this and thank Catherine for bringing us this news..

Lipedema Simplified BLOG

Catherine, Dr Joe Dayan, Dr Stefan Rapprich & Dr Mark Smith - the McDreamys for sure! Catherine, Dr Joe Dayan, Dr Stefan Rapprich & Dr Mark Smith – the McDreamys for sure!

Dr Joe Dayan, Dr Josef Stutz, Dr Mark Smith Dr Joe Dayan, Dr Josef Stutz, Dr Mark Smith

A year ago today I was in the Operating Room at Beth Israel Medical Center/Mt Sinai Hospitals filming with Dr. Mark Smith and Dr. Joe Dayan. Working with them has been a marathon of a different sort and it looks like we are about to cross the finish line! The 1st Center of Excellence for Lipedema Care and Treatment in NYC in the USA is soon to be a reality! www.lymph.org These pictures are from our trip to Germany March 2014.

The Friedman Center for Lymphedema Research and Treatment is located at 10 Union Square East, Suite 2L, New York, New York, 10003.  Lymphatic surgery is performed at Beth Israel Medical Center located on First Avenue and 16th Street in Manhattan.

Dr. Stefan Rapprich, Dr. Mark Smith, Dr. Joe Dayan, observing surgery with Dr. Gerhard Sattler in Frankfurt Germany - March 2014 Dr. Stefan Rapprich, Dr…

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The calming water.. My favourite walk..

My favourite walk along the coast from Clovelly to Bondi is always different. Today the sea was huge and the surf crashed onto the rocks. The colours were turquoise and shimmering. These are the photos I took… Enjoy and feel the calm..

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On the way home there are still beautiful flowers and interesting trees…

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Always remember that a walk no matter how slow is great exercise to help Lymphoedema…

Copyright © 2013-2014 by Helensamia. All rights Reserved.

Feel free to share with others. It can be distributed via social media, reblogged or added to websites. Please do not change the original content and provide appropriate credit by including the author’s name and a link to this blog.
https://lymphnodetransplant.wordpress.com/ Thanks

Complex bandaging….. For difficult areas too!

One of the problems with complex bandaging is that some areas that swell are difficult to bandage and so when a friend sent me information about Coban 2 bandages I was very interested to see the various ways of treating different areas.. This is a link to the 3M page which has a variety of videos for using Coban 2 bandages. You will note there are ones for the hip and tummy areas also round the breast and chest.

http://www.3m.com/intl/ca/english/market/health/Coban/videos.html

Foam or comfort layer

Foam or comfort layer

Showing the two sides of the foam layer

Showing the two sides of the foam layer

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Compression layer bandage

The Coban two layer system includes two bandages, which is a lot less than the usual complex bandaging where the limb ends up looking very “padded” with many layers. There is one layer of foam or the “comfort” layer and then another layer that gives the compression. The other thing that makes this different from the usual complex bandaging is that the bandages stick to themselves… Not to you or your clothes but to themselves. This stops some of the slippage and makes it possible to bandage around the more difficult areas..

The friend who sent me this information has primary lymphedema and was introduced to this system of wrapping by her therapist and is trying it out for the first time. She was surprised that she could still get a running shoe on and that it was far less bulky than usual wrapping. So far she is happy with the results.. Her leg is looking very good but I know she works very hard to keep it that way, swimming, exercise and regular MLD and treatment.

Lower leg bandaged with Coban 2 layer lite with a sock over!

Lower leg bandaged with Coban 2 layer lite with a sock over!

As is everything to do with Lymphedema these bandages are not cheap but you can keep them on for a few days but must keep them dry. (I for see shower difficulties) They are also designed for one-off use… It maybe something you can speak to your therapist about, as another idea for treatment, but it may not be suitable for everyone. There may also be other brands available too and at different prices!!!

Following are some opinions on Coban 2 from therapists who use it… I asked the question on Linkedin groups to get an idea of its use.. It will not replace Complex Bandaging but it gives another option in treatment… It will suit some and not others.. I have removed names and business names from these comments but they are all qualified therapists working with Lymphedema.. ……

“Coban 2 is an ideal bandaging system especially for active people as it is easier to wear shoes & maintain a ‘normal’ lifestyle. Complex bandaging is bulky.”

“I have used coban 2 within our clinic with success. Both the patients and the therapists find it easy to use and have had success with it.”

“I use it all the time. It is fabulous, way better than the regular bandages. As a therapist I only rebadge twice a week so less contact time for patients and I. Much more comfortable for patients and I have had amazing results!”

“I was introduced to coban in 2009 and it changed my patients lives and mine as well. I was previously using only traditional bandaging which was challenging for my patients. Coban 2 provided my patients with greater adherence, improved function and mobility and they could wear normal footwear. Another plus is the comfort layer mechanically grips the skin resulting in less slippage. Wait times were decreased and less clinic visits are required for patients. I have use it for upper & lower extremity, fingers, toes, breast/chest wall & scrotal edema all with fantastic results.”

“I use the coband in a 3 layer pack (with an impregnated Zinc bandage) especially for my LE patients who are struggling with venous ulcers or broken skin. This is left on for 7days”

“And is there a difference between Coban 2 and Coflex TLC (two layer system)? Does it have the same results?”

“3M launched the Coban 2 Layer Compression System in 2006. It is designed for patients with ABPI’s of 0.8 and higher. Patients and clinicians alike were very excited with the new technology. The Coban 2 Lite was launched in 2010 as per the request of clinicians for patients with ABPI’s of 0.5-0.8, those less tolerant of high compression, new to compression bandaging, frail or less mobile. The comfort layer is a polyurethane foam with Coban backing. It is not designed to go on an open wound. An appropriate dressing is required to cover the wound. The compression layer is designed to be applied at full stretch to ensure consistency in the application process, optimizing patient outcomes. The two layers become like a soft cast as the they cohere together, resulting in less slippage for the patient. We have quite a bit of supporting evidence for the efficacy of these products.”

“Is the Coban 2 a reusable product? We’ve looked at adding it to our line but some of the therapists I spoke with were concerned with the cost when compared to washable, traditional short stretch bandages.”

“Coban 2 is a single use product – it can be applied twice a week versus daily bandaging for CDT – so saves on labour costs and patient time, but obviously more cost on product. Sounds like the way of the future but I hear that some patients cannot tolerate Coban2, so traditional bandaging will stay around.”

“How many applications of Coban 2 are typical before the patient leaves clinic care and starts self care? Is the patient responsible for paying for the Coban 2 applied at home?”

“If the client is wearing Coban for 3-7 days, how to they bathe, and what about the skin under the bandaging – does it get funky under there like it would in a cast?
Regarding fewer clinic visits, if the patient is taught how to apply the traditional bandaging, fewer visits can be achieved (as I’m sure most of you do anyway)
I do like the idea of less bulk and being able to don shoes. How are toes and fingers wrapped, and what about large thighs – is there a way Coban can stay up on conical limbs?”

“I was trained by 3M to teach other therapists to use Coban2 (Martina Reddick, RN, was instrumental in getting this product off the ground), and have been using it since before its launch almost three years ago at the International Lymphedema Conference that was held in Toronto. My clients love the bandaging system, as it is very thin and clothes and shoes are no longer an issue. Those who have used both systems will not go back to traditional short-stretch bandages. They wear the bandages for 3-4 days at a time, and, yes, in summer, just like a cast, it can be a bit itchy, but we use cornstarch, etc., to prevent that as much as possible. I have had wonderful results with it. The only problems I have had with it, are occasionally an edge is causing discomfort and the client ignores it, then it cuts into the skin. You have to be diligent about not having the edges roll and having your client TELL you when it is uncomfortable. It is cut and paste, so they can take scissors and cut the edge, if need be. With experience, that no longer seems to be an issue for me. The other problem is that, though the Coban2 has no adhesive (it does stick to itself so no need for tape), those who are allergic to adhesives are sensitive to this product. We have found ways to protect the skin and still use the product, though. The product works a little faster than traditional bandaging, and clients are being measured, generally, by 2 weeks of intensive treatment. Large limbs are not a problem, as this is a product that you can cut and paste, and you don’t need to worry about direction. You can go all over the place with it, which means you can be pretty creative with oddly shaped limbs. You can also use it for more than just limbs, such as buttocks, trunk, breast, chest. Fingers and toes are wrapped with a layer of just the coban2 lite 1 inch (which our clinic was doing already instead of layers of gauze). If it sounds like I am a fan, I AM!”

“Costs for the Coban2 bandages will vary. In our private clinic, clients pay for it. If they get it done at the hospital, the government pays. Our local CCAC (Community Care Access Centre) will provide them for free. I’ve convinced some of the insurance companies to cover it as compression that is part of the massage therapy treatment. It will depend on which country you live in, and what your health care coverage is.”

“I have used it on occasion for people that cant tolerate bandages but it really doesnt have enough compression in my opinion and in the states its expensive.”

“Yes I use it a lot. Its not difficult to learn to do compared to any other system – I went on a two day course here in the UK. You can still get good results with grossly distorted legs. The main benefits are that you can leave it on for three days, which makes it comparable cost-wise to things like Actico where you would leave for two days. The significant difference is patient compliance, because they can get their normal clothes and shoes on. I tell people to walk around as much as they can, and using Coban means they have no excuse not to due to not having shoes they can fit into. Its well tolerated by mostly everyone. When bandaging bilaterally, you need to be careful as the two legs can stick together overnight if ladies wear nightdresses, but this is easily solved with baby powder or cornflour. I like it, but I do tailor my bandaging and compression garments to each patient as I see them as individuals and lymphoedema as a very individual condition too.”

“I will be taking my Vodder recertification course in May and I will ask about that method. I’ll share any feedback I get.”

“I think 5 day a week therapy with MLD and bandaging designed with 1/2″ foam is much more effective and works quicker in the end. Changing the bandages daily reforms them to the size of their leg. The MLD is very stimulating to the system and is needed regularly. The Coban system works well in cases of CVI with legs still shaped likes cones. With the shape changes that often come with Lymphedema, the thin Coban does not provide enough pressure and shape to the bandage system. If you are really limited to how often you can see them, it is a solution. I just prefer to provide a better quality of care when possible.”

“You might find it useful to talk to Denise Hardy at Kendal Lymphology as she is a trainer in the Coban method and involved in the research too. Personally, I think this method is the future.”

“I agree with Linda. I just took my Vodder recertification 2 weeks ago and we discussed this with Robert. In the reduction phase when the client should be getting daily treatment normal short stretch bandaging should be used. You can bandage with long stretch on the foot to enable the client to wear regular shoes. However if you are not seeing the client daily Coban would be a good alternative.”

“I used the Coban 2 working in an OP Wound Clinic. It was a cost efficient solution for patients that could not come in daily or did not have too excessive drainage. If they were in an infectious stage or a scheduling spot not available in a lymphedema clinic, then this was a good solution. Foams and alginates were easily added underneath. Suspension and adherence to the compression (i.e. not removing the bandage) were good as well. I did not use the system as packaged for Elephantiasis patients.”

“For bathing with Coban 2 I recommend a cast cover. I have treated many, many people with Coban 2 and none developed “funky” skin or any type of skin problem. In my experience with teaching self bandaging very few patients choose that option, more are opting for night time compression devices that are less time consuming to don. With coban 2 there is less slippage compared to traditional bandaging. Also the option for a hip spica if slippage becomes a problem. This option works very well!”

Thank you for these responses … This allows patients to make an informed opinion on this treatment..

Feel free to share with others. It can be distributed via social media, reblogged or added to websites. Please do not change the original content and provide appropriate credit by including the author’s name and a link to this blog.
https://lymphnodetransplant.wordpress.com/ Thanks

A Journey With A Purpose. . .

Hi Elizabeth I am reblogging this to show people the difficulties of living with Lymphedema. I also want to share your words of warning about the sun and checking your skin regularly. In Australia with our harsh climate this is a very real problem… Thanks for your honest account right down to the shower chair…

Dr Chang… Improvements in microsurgery

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This is a link from an article published in October 2013. It is about Dr Chang’s work in the USA improving microsurgery for Lymphedema…

Supermicrosurgery: A New Way to Open Clogged Drains

http://cancerconversations.uchospitals.edu/featured/supermicrosurgery-a-new-way-to-open-clogged-drains/

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A film about Lipoedema ….

This video is a must watch to understand Lipoedema. Created in Australia by the LASS group it was sent to me this morning by a friend, with the following information..

“For this film I have teamed up with Dietlind Wagner, a graphic designer & puppeteer and my daughter Tilly, a playwright in London. We thought the neutral medium of puppetry would be ideal to highlight this little-known condition which can make the lives of many women who suffer from it miserable. Lipoedema, is a condition where abnormal fatty deposits accumulate around the hips and legs but not the feet. Sometimes known as “painful fat syndrome,” women who have lipoedema often believe they are simply over-weight but find that no amount of exercise or diet reduces the fatty deposits. Their legs and thighs are out of proportion with the rest of their body. This condition affects women only and manifests itself usually after puberty, child-birth or menopause.

Imagine how soul-destroying it must be, when the only advice your doctor gives you is to lose weight, but you know too well you have already tried every diet under the sun.

With our film we want to reduce the prejudice towards those with the condition and instigate more research into the subject. I shall present the above poster at the 10th Australasian Lymphology Association Conference in Auckland (3-5 April 2014) and the film with the use of a QR code and a tablet.

Life would become so much easier for sufferers, if only more people knew it is a medical condition and not a weakness of the will.

Please share the film!

A big, fat Thank You!

Avril”

Thanks Avril I am sharing this great video… Wonderful work and I am sure it will spread far and wide to build awareness of Lipoedema / Lipedema.