Big milestone!

Never let your Lymphedema define you or stop you from doing anything… Thank you for this very positive post which I have reblogged…Alexa shows us that having Lymphedema does not have to stop us doing things.. Thanks

The Lymphie Life

I achieved a major milestone the other day: for the first time in years, I bought – and wore – a pair of SHORTS.

Shorts! My lymphie leg is my right leg (on the left in the photo).

Last week I went on a weekend trip to Sedona, Arizona, with some of my girlfriends. As I was preparing for the trip, I was faced with a common lymphie conundrum: what to wear in the hot weather. Do I eschew my insecurities and wear something weather-appropriate and comfortable, or do I hide my leg and wear pants to camouflage my swelling? I contemplated my usual approach – wearing long, flowy pants or yoga pants – but decided they wouldn’t be conducive to the extensive hiking we’d be doing. There was one other option, though, one that I have actively avoided for years…

I could wear shorts.

The thought was tempting, yet…

View original post 586 more words

Happy valentines day!!


Saint Valentine’s Day, also known as Valentine’s Day or the Feast of Saint Valentine,is observed on February 14 each year. It is celebrated in many countries around the world, although it remains a working day in most of them.
St. Valentine’s Day began as a liturgical celebration of one or more early Christian saints named Valentinus. Several martyrdom stories were invented for the various Valentines that belonged to February 14, and added to later martyrologies.A popular hagiographical account of Saint Valentine of Rome states that he was imprisoned for performing weddings for soldiers who were forbidden to marry and for ministering to Christians, who were persecuted under the Roman Empire. According to legend, during his imprisonment, he healed the daughter of his jailer, Asterius. An embellishment to this story states that before his execution he wrote her a letter signed “Your Valentine” as a farewell. Today, Saint Valentine’s Day is an official feast day in the Anglican Communion, as well as in the Lutheran Church. The Eastern Orthodox Church also celebrates Saint Valentine’s Day, albeit on July 6 and July 30, the former date in honor of the Roman presbyter Saint Valentine, and the latter date in honor of Hieromartyr Valentine, the Bishop of Interamna (modern Terni). In Brazil, the Dia de São Valentim is recognized on June 12.
The day was first associated with romantic love in the circle of Geoffrey Chaucer in the High Middle Ages, when the tradition of courtly love flourished. In 18th-century England, it evolved into an occasion in which lovers expressed their love for each other by presenting flowers, offering confectionery, and sending greeting cards (known as “valentines”). Valentine’s Day symbols that are used today include the heart-shaped outline, doves, and the figure of the winged Cupid. Since the 19th century, handwritten valentines have given way to mass-produced greeting cards. Extract from Wikipedia ….

I decided this morning to explore the history of Valentines day so turned to Wikipedia for information..

Happy Valentines day to you all..❤❤

Lymph Node Transfer – 1st Surgery Complete

Sharing Rachael’s post of her Lymph node Transfer after Breast Cancer.. Thanks

Rachael's Lady Lumps

This will be a miss-mash of information pieced together.  Mainly because I have to type small sections at a time because of the pain in my right arm from surgery.

For those following my blog for the last 2 years, you know why I had this surgery done and the events that carried me to this point.  For those of you that just found this blog because you are searching for information on a Lymph Node Transfer procedure, I will do my best to fill you in quickly.

Background: Diagnosed with Stage 3 Breast Cancer 2/14/2012.  Bilateral Mastectomy with 11 lymph nodes removed from my right arm and 9 lymph nodes removed from my left 3/2012, 8 rounds of chemo 7/2012 (lymphedema started in right arm during chemo), 28 days of bilateral radiation 10/2012 (lymphedema started in left arm at this time), breast reconstruction and port removal 4/2013, 3D areola…

View original post 1,164 more words

Happy Birthday!!


I am celebrating today the first birthday of my blog!! I never dreamed when I started this what it would lead to, how it would change my life. A year ago today I sat down at the computer with my daughter and made my first baby steps into blogging!!! Little did I know that this was also a passport to an amazing community of fellow bloggers and a chance to connect with so many wonderful people. I had always believed that I was not a writer and my Internet skills were quite limited!! Never the less I dived in and found that this was a great challenge, one to stretch my skills and create something that I had not thought possible at the start.

Now a year later I have created 174 posts my blog has been read in 131 countries and has had 37,269 views and 1363 comments. In addition to this I have “met” some amazing people, many I regularly email, at the start of the year in New York I met up with four of my Lymphie buddies… I never dreamed after 12 years of living with Lymphoedema that I would be able to connect with so many others. Being able to learn from them and help those newly diagnosed in what may help. Being able to share the experience of surgery with someone else who understands why you would try something so new!!

I must also remember the group of wonderful fellow bloggers who have taken me in, allowed me to share experiences as I have shared theirs. I have learnt so much from reading their blogs, understanding other health issues, recipes to try, sharing their travel experiences, healthy diets, ways of coping, beauty hints and many more. I have travelled the world without leaving my computer in Australia and been admitted to people’s lives..

I must thank all of you who have followed and supported me from the start as I took my first tentative steps, to those who have only recently discovered this blog.. Welcome.. The interaction that I get from everyone is fantastic, I love the questions, the news and the bringing together of people that this blog has achieved. I hope that you are all still here with me when I celebrate another year, as always I love to share peoples stories and experiences … You can contact me on

Happy First Birthday !!


The talking stick…. Talking therapy


Talking stick

“The talking stick, also called a speaker’s staff, is an instrument of aboriginal democracy used by many tribes, especially those of indigenous Peoples of the Northwest Coast. The talking stick may be passed around a group or used only by leaders as a symbol of their authority and right to speak in public.
In a tribal council circle, a talking stick is passed around from member to member allowing only the person holding the stick to speak. This enables all those present at a council meeting to be heard, especially those who may be shy; consensus can force the stick to move along to assure that the “long winded” don’t dominate the discussion; and the person holding the stick may allow others to interject. Talking sticks have high ceremonial and spiritual value, and have proved to be exceedingly useful during current implementations.
Akan chiefs in Western Africa have a tradition of speaker’s staffs capped with gold-leafed finials. These emerged in the 19th century as a symbol of the holder’s power.” From Wikipedia

Had a great day catching up with two fellow Lymphies…. So much talking, so much excitement, speaking to others who can understand the ups and downs of living with Lymphoedema.. When I came home I had to chuckle as I thought what we needed was a “Talking stick” … That way only the one with the stick talks and the others wait their turn!!! Well of course we had so much to say and I have to admit to a bad habit of butting in when I have something I want to add!! We discussed compression garments, rolling tops, foot pieces, open toe, closed toe, grade, brands etc etc.. We laughed at my first compression garment that had lace on it, as if I could make it sexy!! We lifted our skirts and compared legs !!! We talked about treatments, surgeries, how our Lymphedema started, how it is now… We talked of hopes and fears. Mostly we laughed at the black humour our situation brings!! Yes we talked and talked….that is what has been the best thing for me since starting this blog, I am no longer alone with my Lymphoedema and that has made a huge difference. Today we met in Windsor as that was a central point we could all get to.. We will do this again and if any other Lymphies from Sydney and surrounding areas would like to join us then let me know… Yes the “Talking stick” will work its magic better than any therapy session!!


Windsor is a historical town at the foot of the Blue Mountains in NSW

Copyright © 2013-2014 by Helensamia. All rights Reserved.

Feel free to share with others.. it can be distributed via social media, reblogged or added to websites.. please do not change the original content and provide appropriate credit by including the author’s name and a link to this blog Thanks