Lymphoedema Stories Booklet


This is a link to a booklet created by the Cancer Action Network of North Sydney And the Lymphoedema Support Group of NSW to build awareness of Lymphoedema and the every day stories of those affected by it. This link will enable you to Download a copy or read online.

In the forward Dr Helen Mackie speaks of the importance of education and understanding to bring a quality if life to those living with Lymphoedema. With the improvements in cancer treatment and higher survival rates the side effect of Lymphoedema is most unwelcome. The hope is that this booklet will give a voice to the needs of those with LE who wish to see better support, care and benefits.

Thank you to all who created this booklet now let us shout from the rooftops our need for better care and treatment, at a cost that is manageable by all, for those with primary and secondary Lymphoedema. Let’s improve diagnosis in the medical community so treatment and care can start immediately. Let’s improve the lives of those living with Lymphoedema….


5 thoughts on “Lymphoedema Stories Booklet

  1. Helen, don’t think I ever told you but, your blog helped me to make several decisions during my treatment process, for good or for bad it influenced me.

  2. The launch of the booklet last week was really lovely, I took away about ten copies and have given two to different medical practices and have an appointment to talk to seven doctors in one of them about lymphatic drainage and lymphoedema! I think the booklet really captures the struggle to get diagnosis and treatment. Good job spreading the word.

    • Have to get some hard copies sent to me … At this stage they are overwhelmed with interest hence the sharing of the online version… Every doctor should have a copy… Everyone should have a copy when nodes are removed.. Everyone needs to share ๐Ÿ˜ƒ๐Ÿ˜ƒ๐Ÿ˜ƒ๐Ÿ˜ƒ

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