This is the latest update from Sue in the USA, again I use her own words.
“The doctor seemed pleased with my progress, but I really believe that this surgery is so new to him that he is not sure what progress is. Since I have been living with this condition for five years, I know a lot more about my leg than he does. I gave him the photos we have been taking of my leg, and he was very happy to get those. I also gave him my measurements, which have been going down slowly. He told me it takes six to eight months to see any improvement, so I would not be concerned about our mutual slow progress. I am going back to work (I run a law firm – where I have worked for more than 30 years) on May 13. I am concerned that the return to normal activities may stop or slow the progress. I am just today feeling not as tired as I have been since the surgery.
I will start my lymphedema massage therapy on Monday, 5/6. I see a lymphedema specialist on 5/2, tomorrow. I never had a doctor who specialized in this condition. I saw a vascular doctor a few times, but he looked at my leg as if I had some strange contagious disease and told me I could try therapy but it would not help. Real encouraging!
I have been using my pump daily since Monday. The doctor told me there is nothing I could do to harm the transferred nodes. He did caution me about the gym though, especially using a bicycle.
There really is not a lot of helpful information out there. I have checked the website of Dr. Becker, the French doctor who came up with this procedure, and she has some information available there.”