Cellulitis has been the bane of my life, for the last 11 years, at a time when I had hoped to be rid of it for ever it has reared it’s ugly head and maybe ruined the party! In saying that I am not really expressing the depths of my anguish or the fact that I find it very difficult to write this post.
On Friday I had an appointment with my doctor for a six week check up after my surgery. During the week I had been concerned that the knee was not reducing from the post surgical swelling and that the transferred nodes at the side of the knee were raised and firm to touch. The doctor was equally concerned and felt that there may still be some infection present and once again prescribed more antibiotics for the next month. This in itself would not appear to be a problem, but what I did not know is the infection can damage the transferred Lymph Nodes, causing theme to “die.” What a shock, this was a side effect I had not heard of prior to surgery, nor can I find anything written on this subject. The reality is that all I have been through over the last few weeks may all be for nothing. I find it very difficult to deal with this and though it is not definite yet I am very fearful that it will be so. I am to have an ultrasound at the end of May and see the doctor again on the 7th June, I will then know if there are any viable Lymph nodes present in the transplanted tissue.
I find that my emotions are very up and down at the moment, it has been hard to pull myself out of a black hole I fell in on Friday, however I have to keep moving forward. On the positive side I can start to do more exercise, I am allowed to do what ever I feel physically capable of which gives me some focus. My goal is to re build my fitness to pre surgery levels and to reduce the swelling in my leg back to pre surgery measurements. I am going to have regular MLD and have ordered a set of Ready Wraps for my left leg so I can work on this. I cannot change the results of the ultrasound but I can control other aspects of my life. Until the results are final there is always a glimmer of hope!! Well that is what I keep telling myself!! ( I can almost hear my counselling voice talking to me!!!)
In starting to write this blog I promised to document my journey with Lymphoedema and “My lymph Node Transplant.” I wanted it to be a personal account rather than a medical one and to share others progress along the way. I wanted to bring together the community of Lymphies and bring some hope for the future, if not now then a few years time, every new surgery has to start somewhere. Think about when we heard of the first heart transplant, now they are common place. What ever the outcome for me I have no regrets in making the decision to go ahead with surgery, if I had not I would have always wondered if it would help. I really love writing this blog, it helps me and I will continue as the story is never over!