Sitting in a hospital room, however nice, does not fuel ones writing juices and “fodder” for my blog has dried up a little being so confined!! The only source of gossip and stories are the nurses chattering at the nursing station outside my room, which on occasions sounds like a party, it goes into overdrive at change of shift time when everyone meets and greets those arriving. There is great excitement when news of holidays, babies, moving, children and the joys of life and time away from the hospital are shared. One night there was great concern, as a patient had lost her name tags and could not be identified, as she was unable to speak, she was needing a dose of morphine which could not be given with out accurate identity. In the end the nursing home that she came from had to fax a picture for ID! A couple of nights later a doctor came to replace yet another canular and threw my name tag in the rubbish, as it had been in the way!! I asked the nurse to replace it, “Before you forget who I am!” Every drug that is given is preceded by giving your name and date of birth, every single time, even though I have always been in the same room. I said I needed a recording to press each time, especially in the middle of the night! I guess that is better than getting the wrong drug.
The doctor came yesterday and I hope to go home on Friday continuing to take oral antibiotics. There is concern as to how this infection has impacted on the transplant and the ability of the new nodes to create lymphatic vessels. However this is not something which will be known immediately as it was always going to be a slow process. In six months I am to have another MRI and a Lymphoscintigraph to map the lymphatics and their progress. Prior to that I believe it is a case of monitoring the lymphoedema to see if there is improvement. It is very hard to tell at this stage what is swelling from surgery and what is lymphoedema, also the fact I cannot bend leg or move too much does not allow lymph to disperse. I cannot wear compression garments over the transplant at this stage but have ordered knee highs to see if they help. Although I knew before surgery that things would be slow and results would not be seen immediately, I was not really ready for the reality of this and how it would feel. I am reminded of the saying, “Patience is a virtue!”