I started at the first step of this journey, August 17th 2012, with my first visit to the Advanced Lymphoedema Clinic at Macquarie Uni Hospital, Sydney. It has not always been easy to find the courage to step up when I could not see the top, or what was hiding there. Today I have nearly reached the summit, as tomorrow will be my surgery for a Lymph Node Transplant. This is the first to be performed in Australia due to Lymphoedema of the leg, surgery on arms in has been done here and though both procedures have been performed overseas the results are mixed and difficult to find.
Today I have a mixture of emotions ranging from excitement to fear! At the start of this blog I asked, “Am I crazy” and in writing this blog I have come to the conclusion that I am not, well maybe a little! I am not sure what the outcomes will be, in reading I gather that the new lymph nodes over a period of time create new lymph channels, so it will take time to see any real results in regard the swelling. However the newly transferred nodes should combat infection, allowing me to return to some of the things I miss. I also hope that by being part of this research I can will bring a brighter future to those with Lymphoedema. The goal being to perform surgery early in the diagnosis of Lymphoedema, prior to there being damage to existing nodes or fibrosis of the limb.
I am not sure when I will be able to blog again, but tomorrow my daughter will be a “Guest Blogger” and let you know how I am! I also want to say a huge thank you to all of you who have and are supporting me, you have given me the courage to keep climbing the steps. A really big thank you to my husband, who has never faltered in encouraging me to do this, at times he has been more positive than me!