Having Lymphoedema changes aspects of your life, many of which I took for granted, but they are changes you need to make to keep the lymphoedema manageable. Gone are my tight-fitting jeans and trousers, replaced by skirts, dresses or loose pants and for sure no minis!! I loved my jeans, I still have them in the wardrobe but I rarely wear them and if I do they need to be stretch! Once upon a time you would never see a dress or skirt on me but now they are my uniform. I also have redundant pairs of shoes that no longer fit, trying to put shoes over thick stockings and sometimes an enlarged foot is a nightmare, hence shoes a size bigger.I am sure those of you with Lymphoedema of the arm have had some agonizing moments trying to find suitable things to wear. The favorite shirt or jumper needs to have a sleeve cut off to get it on! Who would have thought clothes would become such a problem. Men and women with primary Lymphoedema I am sure have their own problems to deal with. Just getting dressed in the morning can take much longer than it used to, out come the rubber gloves to squeeze into compression garments and hope it is a day they do not roll down or misbehave!!! Some people may think I am a little strange when the rubber gloves get pulled out of the handbag to rearrange wayward garments!
Lymphoedema is a cruel health issue in that it distorts and swells areas of the body, no diet will help and exercise will not “tone up” the offending area. The only way of managing this problem is with Lymphatic massage, light exercise, complex bandaging and compression garments etc however the limb will never return to its “normal” size, in fact over time it will get bigger and heavier, especially if neglected. Lymphoedema is a cruel twist of fate whether primary or secondary, whether you are male or female it is a health issue that makes life very difficult. No tablet can make it better, no treatment can make it go away, when you have lymphoedema you have it for ever.
I would love to hear stories from others with Lympoedema and I am happy for you to use comments to do this. Sharing helps others to understand.