This is the latest update from Thomas who had a Lymph Node transfer a few weeks ago in Singapore.. This is a link to first instalment..
7th December 2014
I was discharged yesterday. Feels good to be back home.
I have had my measurements for compression garments taken. I am lucky that I may be able to fit into an off the shelf size. Will be back to the hospital tomorrow to try them.
I was ordered to be partial weight-bearing on my operated leg. I try to not walk too much at home, elevate the leg and continue my bed rest. I intend to so till I have my stitches removed. I didn’t dare to really bend my groin too much fearing I may squash the nodes there! Do others have the same feeling?
As far as I know that the garment needs to be re made when it gets loose. The physio here also discourage circle knit garments. I used tubigrip for many years, it does control the size a little but needs to be changed regularly.
I guess it is a long and slow process from now on to see any real results, but I do see my leg coming down as the skin is sagging from the rest. I hope with the garment it will help the skin to contract. I guess my leg is like a deflated balloon!!
11th December 2014
I just received my compression stocking yesterday from my physio, the vendor flew them in from Germany. It is a class two stocking, I was told it was not flat knit as it is not a custom-made one, but would still do the job. This is not the final garment at this stage. My stitches are still not removed so I can only wear them 3/4 up my thigh, leaving some not pulled up. I tried wearing it today again but I experience some pain and took it off. I will probably use a tubigrip or bandage instead for the time being. What brand of compression garments do others use?The physio says the size will increase when I start full daily activities and does not want me to feel disappointed, at this point they would start taking measurements on the progress.
I will have my first review with the doctor on Monday, I am eager to know what his plan is and I have lots of questions to ask! Eg. When to start full weight-bearing, start massages, etc.
26th December 2014
I am glad I could get out for a Christmas gathering. I had my stitches removed on Monday. My physio told me to start full weight-bearing on my leg so that I could have my muscle working again. The overall size is smaller, compared to my first visit two weeks ago just after my discharge from hospital! However it was slightly bigger than the previous week due to increased activity. The physio told me to start increasing my activities so that they can get a realistic measurement for the final compression garments that Will be ordered next week. I hope I will be getting flat knit. Dr Terence also ordered toe caps as my current stocking is an open toe compression garment.
After a day of Christmas activities my toes swelled up, as expected, I bet my legs did too. I was reminded that my legs would swell still by the physio, so I am prepared, but I will bed rest during boxing day. The size is coming down but with some walking activities has started to increase again, all I can hope is that my transferred nodes start to improve my lymphatics.
I hope the nodes survive, I do worry about this! I intend to swim when I get better in about 6 months time, my physio says that the pool is good. I am doing deep breathing a few times a day. Dr Terence told me that the MLD can be started in a months time. So far I have been walking well without much pain but I am not doing big movements or squatting.
Indeed it is a roller coaster of emotions.
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